A joint approach to coordinate existing initiatives in MS aiming to avoid overlap in the actions and to increase the power of representation of the MS world at institutional level in Europe with the ultimate goal of improving MS patients' lives.
The Multi-Stakeholder Initiative, under the umbrella of the European Charcot Foundation, aims to:
- align and strengthen the collaboration between the different MS Initiatives and avoid overlap.
- advocate the necessity of the implementation of organisational structures to support MS Care Units throughout Europe.
Participating Multiple Sclerosis Initiatives:
- MS Brain Health: MS Brain Health is calling for a radical change in the management of multiple sclerosis because time matters at every stage of the disease.
- MS in the 21th Century: The “MS in the 21st Century” initiative was established with the purpose of (1) defining how multiple sclerosis (MS) treatment and standards of care should look in the 21st century; (2) developing a minimum standard of care across the world; and (3) motivating the broad MS community to align standards of care and challenge the current treatment paradigm.
- Neuro-Compass: Neuro-Compass.education is an essential medical education resource, developed by a steering group of experts in multiple sclerosis with a breadth of knowledge and experience in the field. The content is based on European regulations and practices, and is intended for all healthcare professionals who manage people with multiple sclerosis (eg MSologists, neurologists, radiologists, rehabilitation specialists and nurses).
- ParadigMS Foundation: ParadigMS is an independent and non-profit international group of Multiple Sclerosis experts dedicated to improving Multiple Sclerosis patient care by translating state-of-the-art science into practical education at local level.
Participating International Organisations:
- European Multiple Sclerosis Platform: The European Multiple Sclerosis Platform (EMSP) is firmly committed to an ultimate vision of a world without multiple sclerosis (MS). We rely on a growing network of 40 member societies in 35 European countries.
- ECTRIMS: The European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS) is a non-profit organisation and an independent representative European-wide organisation devoted to multiple sclerosis (MS). For a quarter of a century, ECTRIMS has served as Europe’s and the world’s largest professional organisation dedicated to the understanding and treatment of multiple sclerosis
- European Academy of Neurology: EAN provides a go-to resource for everyone working in the fields of neurology and neuroscience. We bring together national societies, institutions, clinicians and researchers and offer a forum for research, learning, networking and best practice for our patients.
- Multiple Sclerosis International Federation: A unique global network of MS organisations with 49 members from around the world.