Official launch of PROMS initiative
Today, a new global multistakeholder initiative on Patient Reported Outcomes for MS was officially launched.
The Patient Reported Outcomes Initiative for MS (PROMS) will bring together the global MS community, people with and affected by MS, healthcare workers and researchers, healthcare industry and many more- to enable science with and of patient input in research, clinical trials of new therapies, and the design of healthcare systems.
The initiative was presented by a panel consisting of Peer Baneke, CEO of the Multiple Sclerosis International Federation (UK), Prof Mario Alberto Battaglia, President of the Italian Multiple Sclerosis Society (IT), Prof Giancarlo Comi, President of the European Charcot Foundation (IT), Pamela Valentine, CEO & President of the Multiple Sclerosis Society of Canada and prof Patrick Vermersch, Board Member of the European Charcot Foundation.
The programme of work will be led and coordinated jointly by the European Charcot Foundation and the MS International Federation. It will build on the experience and expertise of the Italian MS Society, who will act as the lead agency on behalf of the global MSIF movement.
For more detailed information, download the press release.